Even worse with temperature fluctuations. Last night, I was so cold, I was shivering and my teeth actually were chattering. It made no sense as I was cocooned in my woolen capelet.

Today I went through a feverish spell which was equally baffling, but I turned the heat off. To add to the yuckiness, I threw up. Sigh. So, it seems the only thing I can keep down is SuM's homemade shortbread. Luckily, my vision was excellent yesterday and decent today, as I've been engrossed in a multi-fandom crossover fic of over 100K words. Getting close to the end. And I had the company of my fave TV shows.

I was delighted to receive two pieces of mail: holiday cards from church-John (the first time he's done that) and one from my "Auntie Marilyn". I think it's wiser for me to thank them tomorrow - hoping I'm feeling better. ::crosses fingers:: Some solid sleep should help, too, as I've been up early reading, then sleeping for a couple of hours, then u[p again, yadda yadda.
Gee, it's a good thing I didn't wait until tomorrow morning. Yes, LoL. So, I'd woken up really early but convinced myself to just stay in bed. When I finally got up, I was mostly devoid of pain. Aha, the little piggies of the universe finally got their acts together and also delivered on crisp, colourful vision. Yay.

Still, I took it easy in the morning, reading "Albatross" until I'd finished it. Terry Fallis once again left me with a smile on my face. He just exudes sunshine. After that, I had the rest of Brian's cookies for brekkie. Then, I got to work. I ended up just decorating one tree with two sets of lights (one clear, one multicolour, a long roll of translucent holiday ribbon, as well as a few other colourful items around the base.

I was unable to put up the sequinned wall hanging because I couldn't find the special hanger; OTOH, I thought my golden sleight was lost/misplaced, yet it was right in one of the storage boxes. Naturally, I blame the cats! I filled the sleigh with pine cones and set it on the fireplace and also hung my stocking. I still have to add a decorative bejewelled ribbon to the dining table and then I'm calling it done. Decorating while blind is always a challenge and I'm definitely avoiding wearing myself out - for a change.

So I need to climb in the shower now and hydrate. Tired little piggy.
Sigh. After a second night in a row of falling asleep naturally (aka without conscious thought), I woke up early but devoid of pain. Well, you just know the universe can't stand that, so the pain returned, little by little, over the hours. Sigh. So, instead of tidying up and decorating, all I did was remove the summer flowers. Before I knew it, it was time for movie night at the house. SuM, S. and I watched "The Prom" which we hadn't realized was a musical. We finished off my bottle of Hypnotiq, had peppermint tea and cookies. I'd cheated a bit and used a drop of atropine in my right eye. So, right now, I can see so amazingly clearly. I'd like to stay up reading, but my mind is telling me to conk out. What to do, what to do?

Quick response? Nighty-night, all.
Surprise! Today was just such a day, as I woke up with grotesquely reduced vision. For a laugh, ask me how I was able to type emails. Or, better not.

The only good thing was having a conversation with my former co-leader of the disbanded blind group. She was having her own version of extra blindness today and sent an email to our mutual product supplier - to the old, no-longer-in-use gmail address of my current group. So I called her. We shared our individual tales of woe. Yet, even with her own problems, she said that - if she could drive - she'd be over to my place to help me with my physical problems. What a sweetheart. Though I have to reveal that she's from hardy stock: older than I am but with no mobility issues. Lucky.

Anyway, now that I've checked in here, I can check out of my body temporarily, Returning to bed and cartoons.
Well, I've been throwing many towels around for the last two days. At least, I did manage two almost decent sleeps. But, yesterday, I sat down to get a whole pile of paper ready for recycling. I was in my office chair, bending over the pile on the bed, fumbling blindly with the staple remover. And it seemed that the staples weren't standard, either. Sigh. So, not only an aching back, but also a couple of shredded nails.

More torso/gastric pain didn't help either. I think I'm going to have to stop getting my entrees at least and just stick to soups and desserts that don't disagree with me. I guess that'll be a conversation for next week. It's not a good time to be feeling sick when I eat.

At least I had some determined distractive TV that included a tiny shocker on Young Sheldon and two inventive epis of Dragons' Den. But my vision was crap all day yesterday, so I delayed watching ST:Disco until this morning where it did an excellent job against the pain. Then, tonight, there was MacGyver but there was too much shooting so I couldn't really tell what was going on. However, I had luscious, glorious vision All. Day. Long. Too bad I didn't have the patience to read my library book. Sigh again.

Anyway, it's almost time for pills and bed. Crossing my fingers for a good sleep.
helenkacan: (Default)
( Dec. 16th, 2020 11:33 pm)
Not just the mind, but also the vision. It's not fair that I'm getting a one-on/one-off sleep routine. Last night was definitely OFF, as I went to bed after midnight but was up at 3:39. The only good thing was excellent vision. I'd set the alarm for 9 - which was a cruel joke. So I read for a wee bit. We had blind book club this morning and spent the time discussing our first-ever play, Wilde's "The Importance of Being Earnest". Even for a short play, we could have devoted separate meetings to each of the three acts. The discussion was all over the map, as we brought our individual backgrounds (two Greek/Macedonian, two Chinese, one Filipina, one from ?/South American and me).

After that I dropped off into a nap. And that was the most engaged part of my day. I need bed. Stat. Even with the TV on, I can't distract the pain away. Sigh.
That's what constituted my Friday through Sunday. Nothing was predictable, so I suffered levels of pain ranging from extreme to tolerable and rarely reduced to non-existent. I threw up on Friday morning. For the record, I almost never do. My vision was mostly lousy, though I was able to appreciate this week's ST: Disco on Friday morning, absolutely loved it (including Tilly's "look" in the Mirror universe) and S. really appreciated having someone with whom she could discuss everything! But, then my vision tanked, so all the shows that followed (NacGyver, Dragons' Den, and other regular far suffered. I still have a few more first-run shows to watch, but it's too depressing to be in a snowy fog.

The highlight of Friday night was the blind group's Town Hall regarding concerns specific to our community, followed by a celebration with stories and music. I didn't get a chance to tell my story because I can't figure out how to unmute myself. Sigh.

Today's highlight was getting a pretend visit from a fake Santa. SuM called out that I had to pretend she had a fake beard on. It turned out one of the boxes of goodies ordered only on Thursday was delivered. On a Sunday morning! I was so very impressed.

Another constant this weekend was unscheduled naps which were wonderful in my winter cocoon. Anyway, I'm getting close to pill-taking and bed-time. Yay!
HPCP;ATE. lots and lots of glorious chocolate! So, Brian and I agreed that he would phone me at 5:30 p.m. Early on, I allowed (uh, begged) him to possess my computer, because my vision had colour but was very fuzzy. So he took over and we went through two sites, one in TO and my original fave in Niagara. Because I wanted everything(!), that's what I'm getting. I'll just have to wait for the free delivery.

After that, he fixed one of my issues with my Office suite. After that, I mentioned my expired parking permit. Instead of dealing with it on my computer, he said he'd d/l it and fill it out with me over the phone, then print it and mail it to me. Whew, that's a load off my mind. He's also planning to make a - sigh - contactless delivery of baked goods (by him, natch). Then we'll look at each other longingly - him outside and me inside through the window - hoping for when we'll be able to get together and travel once again. We got off the phone at exactly 8.

I had some other lovely news earlier. The blind group's secretary phoned me and said there's a $50K grant that's being disbursed to people affected by the pandemic. She remembered that I'd lost the use of my magnification software, so I should apply to get a bland new version. Hmmm.

Then, in the evening, one of the group's members earned from the Prez that the wee winter survival kits were my idea, so she sent me a lovely thank you. I replied to her, saying there are a lot of cases of paying it forward in our community and that I hope it continues.

In other non-news, I slept well (until 9:30) but was in pain for most of the day. Sigh. Watched some TV including news and am about to watch Young Sheldon. And, finally, it's almost time for pills, so I'm grateful for that.
And THIS is why I watch the news every day. I'm trying to catch up on my recordings, so I was really surprised to see yesterday's recording still there. But, I just remembered I couldn't watch because of my Zoom meeting. So what's the what> Apparently, we had another meteor burst through the atmosphere Monday evening. And, Chuck Yaeger (who definitely had The Right Stuff) is no longer bound by physical limitations. Maybe I should reread his book.

Otherwise, I continued to wear myself out, this time with a dizzying load of laundry. And, then, I hit the bed. You know I'm tired when I doze off during Jeopardy! I'll watch the recording tomorrow ::fingers crossed::

Otherwise, I was busy and delighted to be answering emails of praise to the blind group. Well, not entirely delighted as my vision was crap today. Yes, yes, I know I can't have everything - as I acknowledge a good night's sleep and diminution of pain. As long as I'm patting myself on the back, I also provided a character reference for SuM this morning.

And, now, I deserve something sweet as I finish watching tonight's news. Nighty-night.
More than eight hours of sleep in a delightfully cozy, cheerful bed did me a world of good. Mind you, I still had to stretch my boundaries, finishing off the steam cleaning of mf the bathroom and then doing a small load of laundry. I think I've definitely determined that pushing the machine and inhaling steam improves my vision.

As the day wore on, the pain returned, so I spent much of the two-hour Executive Zoom call in discomfort. Good thing it was audio only. At least I was happy to hear how pleased our members have been receiving their winter treats and our other efforts to their benefit. Just makes me really grateful for belonging to such a group and being able to contribute.

Anyway, I'm fading quickly. Trying to watch a titch of TV before bed. Earlier, I'd watched yesterday's repeat of Bull that was heartbreaking - about a respected member of society who'd overcome his unfortunate upbringing by paying it forward - establishing a summer camp for at-risk youth. The only problem is that he ended up putting them at risk - from his increasing sexual advances. The ultimate proof (after "He said" vs the only "He said" the team was able to secure) was found in cameras stolen from the man's house which still contained film of some of his improprieties. Taking their existence as probable cause, the authorities carried out a raid and found current evidence that he was still seducing assaulting 13-year old foster children.

Okay, I'm yawning and my fingers are getting all fumbly. Nighty-night, all.
Let's begin with long and glorious. After nodding off to sleep at my usual 1-ishness, I was still asleep at 11:27 when S. nocked on my door, asking a favour. Oh, I needed that sleep so much.

After I finally got going, I busied myself with little things, such as hanging up a couple of dresses that were mixed in with coats on my rack. After that, I put away the rotating sets of summer bedding and retrieved the lovely, heavy red flannel set. I'll put it on tomorrow. I sent an email to the woman who'd sent me the card I got yesterday. I received an email from my sis RS this morning asking for my address, so I guess I'll be getting one from her, too.

The only thing I didn't get around to doing was emailing Brian to see if we could have some time on the phone tomorrow as he was busy baking today. There was a virtual Santa Claus parade filmed at Canada's Wonderland so I recorded it. Then I was frustrated trying to get on FB so I could click the link on the church's virtual concert. I couldn't get it on the desktop, the iPad was being impossible, so I watched the first few numbers on my phone - which does not have Smart Invert. Sigh. I'll try again tomorrow.

My vision improved a titch since yesterday. Today, I can see yellow font against a blurred dark sage background. Let's just say that watching the season premiere of MacGyver wasn't a very cohesive experience. Come on, body, you fought off most of the pain; now gimme some sight! I know, the little piggies of the universe will get right on it. /sarcasm.
All of yesterday's positivity? Gone, dissipated and spread on the wind until only a faint memory remains. The pain hit around 3:30. Lather, Rinse, Repeat - namely take pills, climb into bed and hope. It took forever. I still had sight in the middle of the night but that too leeched away. I finally got some sleep around 7. I had a granola bar and my pills for brekkie, dragging myself back to bed after 1:45. Imagine my shock to wake up at 6:45. It had taken that long for my body to harness all of the pills' essence and allow me to rest.

Spent the evening watching all of my daytime shows. Right now I need some healing, distracting of Peppa Pig. Let's hope it works.

Finally, I was surprised to receive my first Kissymas card. It wasn't from any of my church friends, but instead from the secretary of the blind group. With my vision AWOL, I can't tell what's happening. Hoping for vision tomorrow. Nighty-night.
Sure, why not? Yesterday, we had an alien visit. There was a meteor seen over Lake Ontario (that could have entered the atmosphere somewhere between Syracuse and the lake (so, around 100 miles). I don't know whether the meteor disintegrated completely or whether there may be meteorites found eventually. No matter, I just thought it was way cool.

I took it as a good omen for today. Even though I went to bed with back spasms, I woke up at 8:48 completely free of pain. Yes, please. I'd like more days like that. Even better, I had brilliant vision All. Day. Long. that even watching TV couldn't fuzz it up. So, I really, really enjoyed being able to watch my regular shows clearly, including Young Sheldon, ST: Discovery, and two epis of Dragons' Den.

But, wait. That's not all. Earlier in the day, I managed to harness some of my pain-free state and took all the (clean) clothes strewn across the couch and actually hung them up in the closet. I won't say it looks pretty or is in the correct section, but it's done. So, even though the pain has been nibbling away at me over the hours, I hope I can continue to do more every day so I can get my Kissymas deccies up. At least I have a wonderful goal in mind and S. has agreed to help me. So, yay, yay, yay!

It's almost time for my pills, so I think I will call it a night.
helenkacan: (Default)
( Nov. 28th, 2020 11:50 pm)
It's usually the right one, so I guess the left one is trying to catch up. But it's a trivial pain which suits all the trivialities of my day.

I ate, watched TV, read fanfic, caught up on FB, huddled in bed for warmth and am about to have cherry cobbler for my midnight snack before swallowing my pills. Obviously, with all the eyeball exercise, I had a decent vision day. Hope it'll continue.

Okay, let's dig into that yummy dessert.
Sigh. Let's include the 3:25 a.m. silent screaming blues. Thankful that two more pills calmed the spasms and I slept until the alarm at 9:20.

In the early evening, I tried to connect to the special chocolate maker in Niagara so I could place an online order before Christmas. Um, getting a 404 Error response is not what I wanted to see. So I texted Brian. He replied that they appear to be going through some kind of restructuring. Arrgghh. I then tried to find chocolatiers in TO. Oh, sure, I can order online - but for curbside pickup only. Uh-huh. I tried some more sites but had trouble to read stuff on the screen. So, I'm giving up trying to order gifties (both for myself and others). I guess that was a hope too far.

Adding to my disappointment is that my vision kept leeching colour. Yesterday's bright yellow was now fuzzy white. Glossy black is not snowy charcoal. Sigh. It's the shortest duration of recreational use of atropine ever.

Anyway, I still watched my usual TV shows including tonight's retro N.C.I.S. with younger versions of Gibbs and Ducky featuring prominently. I was also delighted by a cooking video on Slog where the cook used Thanksgiving leftovers to create a soup with stuffing turning into dumplings, a salad with croutons being made from compressed stuffing, and the most outrageous was a sandwich with cranberry mayo, warmed breast meat, dark meat in gravy, mashed potatoes (perhaps another couple of ingredients), all between two hefty slices of bread. I was impressed!

Anyway, what will impress me the most is having my pills work tonight. ::begs the universe::
Starting with the 3:25 a.m. silent screaming (just how wide can I contort my mouth?), finally managing to sleep until around 11:30 when I found my eyesight non-existent (as in a blurry white blizzard. Sigh.

I'm also not looking forward to hearing the new Covid restrictions that will be announced tomorrow. I'd given up on returning to the nail salon as my big right toe is STILL growing in thickness but not in length; so I'm looking at going to a medical place that specializes in dealing with diabetic foot care, even though I'm not a diabetic. But, at least, they should be a better option than a nail salon. I now know where they are approximately, just need to know if they're accessible. I guess that'll be my project for tomorrow … along with hanging up my clothes. [You don't want to know. Trust me.]

Because of the blurry vision, there was no way I dared watch tonight's ST: Disco, so I managed with just Young Sheldon and Dragons' Den.

At least the best part of the day was waking up my mouth(!) with a new meal: sweet chili chicken with basmati rice and green beans. Mega delish!
It's about that I enjoyed a day from start to finish, beginning with waking up at 9 to my new alarm ringtone (the original TOS Trek theme was a gentle attention grabber). Then I got my meals order in and got ready for monthly blind book club. Didn't have time to eat, so I just had my pills and some miniature chocolates.

Though I hadn't read the book (Tangled Vines), I enjoyed listening to my friends discussing it. After the meeting ended before noon, I was then free to have real food. The meal I chose was chicken rosé pasta. I don't know why, but I'm really sensitive to salt right now and that's how I reacted to the sauce. Sodium from the wine?

Took it easy in the afternoon. As I'd woken up with wonderful vision, I borrowed our book for December and also noticed my app was suggesting the latest book by Terry Fallis. So I borrowed it, too.

As it was no-new-TV Wednesday, I just watched my regular shows. Now I'm going to squeeze some more reading out of my visual acuity before heading to bed. So much joy from reading today!
Normally, waking up at 11:11 would be fabulous, but not this time. Yesterday, I was silently screaming with pain at 3:25. You know the drill: I took two more pills and fell unconscious. This morning, the screaming time was 2:20. If it weren't for the pain, both during the night and repeated during the day, I'd thought of making an appointment for a pedi at the mall for Thursday. Well, screw those plans when I can barely sit in a chair. Sigh. So I spent a lot of time in bed. Yesterday, my fave TV was the season opener of Bull which was done through the lens of Bull in a Covid nightmare. Tonight, it was the season premiere of N.C.I.S. which was just weird - mostly because I couldn't see much of the screen.

So what made me happy today (considering how I can't predict when pain will incapacitate me from leaving home)? It was learning that Baby Yoda is now on the ISS, thanks to a Japanese astronaut with a sense of humour. Yay!

I don't know if I have the stamina to stay up more than 12 hours. I guess I'll find out soon.
I didn't wake up - officially - until nearly noon. Pain-free, I might add, even though last night's SNL was a bust, with the repetition of the show following election day. Ho-hum. So I talked my pain levels to controllable parameters and then, thankfully, conked out.

So my meds schedule was off-kilter which is why I didn't provide a bottle of wine for the house dinner at 6. Before that, we had some excitement in the afternoon with lots of windstorms and power losses. Eek. Luckily, we weren't bereft for very long and the rest of the day could proceed.

So, dinner ended up being the special cheap soup mix in a slow cooker to which had been added stewing beef and parsnips. accompanied by thin crisp slices of garlic baguette, and Pepsi to replace the missing wine. After dinner, we had cookies and tea as we watched a pretty useless IMO movie, "Widows", on Netflix. ::rolls eyes:: S. asked if I'd be interested in "Aquaman". When I agreed, we had another date set for dinner and a movie for next Sunday night, as SuM will have another weekend off. Yay.

The best part of the evening is that either the Pepsi or the connectedness left me with wonderful vision. So I'm going to stay up a tiny bit, keeping my fingers crossed.
A tale of two days.
Yesterday, I woke up at 9:11. Today, I managed to sleep all the way to 10:24.

Yesterday was a wasted day as far as my vision was concerned. Everything was leeched of colour and glaring so that, when I wanted to watch Battle of the Blades, I couldn't even see the skaters. That made me sad, because one of the pairs had the guy doing a death spiral - a lot harder for a guy to do because of the different centre of gravity, let along being kept in place by the strength of his female partner. But at least I got to hear the judges describe it and be impressed.

Today, I regained my colour perception, so was able to read - hey even fanfic is terrific after a rotten day of nothing.

But, right now, the pain is overwhelming me, so I'm going to stay up to see if watching SNL really live may alleviate some of it - along with the appropriate pills. ::crosses fingers::
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