Let's begin with long and glorious. After nodding off to sleep at my usual 1-ishness, I was still asleep at 11:27 when S. nocked on my door, asking a favour. Oh, I needed that sleep so much.

After I finally got going, I busied myself with little things, such as hanging up a couple of dresses that were mixed in with coats on my rack. After that, I put away the rotating sets of summer bedding and retrieved the lovely, heavy red flannel set. I'll put it on tomorrow. I sent an email to the woman who'd sent me the card I got yesterday. I received an email from my sis RS this morning asking for my address, so I guess I'll be getting one from her, too.

The only thing I didn't get around to doing was emailing Brian to see if we could have some time on the phone tomorrow as he was busy baking today. There was a virtual Santa Claus parade filmed at Canada's Wonderland so I recorded it. Then I was frustrated trying to get on FB so I could click the link on the church's virtual concert. I couldn't get it on the desktop, the iPad was being impossible, so I watched the first few numbers on my phone - which does not have Smart Invert. Sigh. I'll try again tomorrow.

My vision improved a titch since yesterday. Today, I can see yellow font against a blurred dark sage background. Let's just say that watching the season premiere of MacGyver wasn't a very cohesive experience. Come on, body, you fought off most of the pain; now gimme some sight! I know, the little piggies of the universe will get right on it. /sarcasm.
Thankfully, two more pills helped and I slept all the way to 7:44. Alas, the morning pills felt disinclined to kick in, so I had to rely on the power of imagination and glorious symphonic music as I watched last night's epi of ST: Disco. I loved the whole Trill thing. I also watched last night's Battle of the Blades even though I didn't really have enough sight to watch figure skating. Sigh. Tonight I watched another compelling rerun epi of Bull though hearing Christmas music was jarring. As is knowing the Ho-Ho season will soon be upon us. I don't want to think about it. Helping me was the fact we're in the middle of another mini heat wave with temps around 70 every day.

I also distracted myself with a couple hours of work for blind group. I just have one thing hanging over my head for the morning.

Okay, back to watching pain-crunching TV.
Yes, I'm still pretending it's Sunday. I'd stayed up until 2 watching SNL whose musical parodies had me awash in memories of the real thing aka Broadway and NYC in particular: One Singular Sensation, Send in the Clowns, If I Were a Rich Man, One Day More. You get the idea. So much glorious singing!

When I woke up, it was after 7 - new time, so it was … acceptable. I wasn't in pain even though the spasms were at te fluttering stage. And I know why I still had exquisite sight when I woke up this morning: I think I'd used the atropine last night rather than my glaucoma drops. Oops? But it felt nice to be able to see real people on my TV screen. OTOH, I was worried about the 10% infection rate described during tonight's newscast of a nearby city where my blind friend moved. She's the one who hasn't replied to my phone call or email. So I worry more.

Well, I'm going to take advantage of the extra sight and stay up reading. Whenever I wake up is … whenever.
Seriously. Even after all the ComaSleep yesterday, I still fell asleep easily after my vision abandoned me after 1 AM and slept until 7-somethingteen. Also … NO pain. So I was a pretty happy camper. There were a few flutters of pain trying to seize control, but I kept them at bay.

Despite fluctuating vision (so, now it's not just leeching colour, I seem to have zooming in and out episodes. Just as uncontrollable as the colour thingy. I swear, I am the weirdest vision loss patient in the universe!

Despite the visual inconsistency, I forged ahead with reading the library book. I'm half-way through (yay, me) and have just reached the extremely emotional, heart-wrenching part. But I continue to be curious about the Occupied Channel Islands.

Between the reading, more napping, there was lovely, peaceful music via the TV. I love nature sounds that include lots of running water.
Okay, okay, I'm exaggerating. It's been 18 years since I shook off the SADS that had plagued me since the 1980s. But, losing minutes of daylight from tomorrow on has always depressed me, especially after the autumnal equinox. Sigh.

So, I'll describe my recurring dreams: in them, I'm an opera singer performing on stage. I have full mobility though I'm not sure how old I'm supposed to be. Yeah, I know it's delusional, especially as I lost my voice FOR GOOD a while ago. Sigh again … a musical sigh this time.

At least my sleep is simply splendid. I fall asleep within a minute. And sleep until past 9 (and now I hope I haven't jinxed myself).

My day was filled with reading, watching TV, and lying in bed. The latter was because I was in pain. Right now, I'm gritting my teeth as all I could handle was a banana for dinner. Woo-hoo, or not so much.

At least I have some good news to report. My chosen sis Jan sent me a text last night, asking if church was resuming this weekend. It turns out the church had sent out the electronic newsletter saying it would be reopening for morning services on July 5. That's going to be a huge shock to my system, to wake up early and attend in person. Yes, even if I haven't had a haircut. All together now, siiiigh. Anyway, I need to drink more water, take my pills, and go be a plank laid out on the bed.
Yeah, there was a shooting described on the 6:00 PM news as well as a collision between a driver and cyclist. But wait, it gets worse. The driver left his car, grabbed a pipe and began beating the cyclist. When the cops arrived, he tried to board a bus across the street but was denied entrance. Idiot.

I did not have a stupid day. I had 8 hours of painless sleep (from nearly 2 to nearly 9). I so needed that. Then I spent most of the day lying flat on my back. Still, the pain took a run at me before 8 p.m.

I did some blind group work, distributing info on a reasonably-priced service if people need rides for medical appointments or grocery shopping.

Caught up on all my recorded Peppa Pig. There was an eclectic mix of music on the French station: The "Love Story" theme for piano and orchestra and birdies; what I believe was "Moscow Nights" sung by the Red Army Chorus; and "When I Fall In Love" by what sounded like an oboe. And other stuff.

I'm about to have soup, then my midnight round of pills, and hope for another good night of sleep.
Well, I did something stupid last night. Had my Coke too close to going to bed. So I couldn't sleep and decided to catch up on the newest Savage Love comments. Finally managed to get my heart rate and respiration calm enough to conk out at 4 a.m. Slept hard until 9:19 (yes, one of my palindromic idiosyncrasies).

Had another mostly mind-numbing day. When one day follows another with no differentiation.... Sigh. But there were highlights, such as getting an email from someone on my LJ friendslist. Except I'm not posting on LJ, so they were wondering if I was okay. I replied and we're now connected on DW, though I'm still wondering why I can't crosspost. Aggravation.

Decided I needed a nap to catch up on sleep. Went to bed at 1:45, setting the alarm for 4. Woke up at 2:35; was SO not amused, but fell asleep, had some non-vivid dreams and woke up with a start at 4.

Watched my usual game/judge shows and caught N.C.I.S. Nola on Rewatch. It was really sad, about a black Petty Officer being killed by a cop who thought he saw a weapon (it was a phone). The role of unconscious bias was brought up as well as the indecent haste of the state officials trying to push through inaccurate evidence to avoid rioting. It ended with a cantlelit vigil and a different performance of "Lift Every Voice".

Did some work or the blind group with the membership guy. We make an efficient team. And our Prez. and his wife are self-isolating. This is when you find out just how long you can stand to be in your partner's presence!
Playing the French language station scored me seve3ral wonderful memories one of which was "On The Street Where You Live". Alas, I can't remember who whote it but I remember it well. The other highlights were selections from "My Fair Lady", I believe it's a recent rerelease but I'm staying faithful to the original. Mind you, hearing the announcers saying "Higgins" was a hoot.
Only five hours of sleep, but at least not in pain. I spent much of the day reading my Jean-Luc Picard Autobiography (with horrible spelling errors) and napping. I really wanted to make a FB post about l'il Giggly Ballerina Piggly, but my desktop wasn't cooperating. And my phone is frozen on the FB app on which is superimposed a fake you-have-won-a-new-phone placard presumably from my service provider. Uh, I don't think so.

Had several very vivid dreams during my naps. One of them really worried me. I dreamt that someone important had died today; then, the news came in that the world-famous conductor Seiji Ozawa had also died today. Really not wanting to be a modern-day Cassandra, I hesitated to ask Google, but found out that the maestro is in hospital with heart problems. Whew.

My day was so boring that I was willing to watch last night's MacGyver even though it was a repeat - but an excellent one. And then I binged on many, many epis of Peppa Pig. There's always room for happy piggy cartoons.

Anyway, I think I'm going to read some more. The vision is ... so-so (pink/caramel against aubergine), but I can still read words.
What differentiates one day from the next? Well, after a weird night, reading until about 3 (at which time the Robax had already worn off, so I had to take two more), I ended up sleeping until 11:54 a.m. Wow! Mind you, the spasms kept trying to reassert themselves which was so wearying.

Couldn't really read too much today because the sight was very fuzzy (though at least the font was pale yellow). Watched last night's The Rookie and tonight's Bull (which just happened to be about Anthrax terrorism! Talk about timing. Also enjoyed my usual game shows.

Some of my friends are doing wonderful things via FB. Brent's husband played Telemann on his recorder. Others are encouraging their friends to "check in" and make daily posts. I just wish I could read more posts on my phone. Sigh. Anyway, I think I'm about to crash after a day of only 12 hours. Until tomorrow....
Sigh. That's not a good sign. Also not a good sign was the onset of spasms in the middle of the night, prompting me to gulp down a couple more Robax. They did the trick and I slept hard until the alarm woke me up at 9:25.

After brekkie, I tried various ways to access the mini-webcast, but gave up in frustrated blindness. I'll try again during the week when I have better sight. Instead I alternated between reading a book and lying in bed with pain (sigh, again). I also sent out a cancellation notice for the blind group. We've cancelled a lot of events for the next few weeks. Definitely not fun.

There was nothing to watch on TV. Last night's SNL was a repeat so I switched to the French music channel. I was enchanted to hear the Papageno aria and Papageno's and Papagena's charming duet from "The Magic Flute" sung in German. I'd hoped they were playing the entire opera, but it was a mixed bag, with "As Time Goes By" on classical guitar inserted between a couple of Mozart's Piano Concerti.

Didn't have much to eat today, so dinner was yesterday's cornbread heated up in the microwave then slathered in soft butter. And a Coke. Wow, such a feast. /sarcasm. I'm also considering ordering groceries to be delivered this week. I think that they are taking steps to prevent shortages. In any cases, I just need basics like organic juices ... and ice cream! Okay, back to beautiful music!

ETA: One sweet note on FB regarding church: two of my friends - a mom and her grown-up son who was one of my fave deacons - watched the service online together.
That's the kind of day it was. Up and down like a seesaw, I'm feeling seasick! First of all, it didn't help that I opened my eyes at 4:33. Managed to stay in bed until 5:55, then got up. At least it was a very warm morning and sunny. Yay. Got to church at 9:45. It was a special service to end Black History Month, with one of our special choirs whose members are from the Caribbean and Africa. I don't think the neighbourhood was used to the lively nature of the singing! Our guest "preacher" was a human rights lawyer from Jamaica and a friend of mine. He also was co-Consecrator at Communion. I didn't get a chance to talk to him, but did to his husband who has a busy and complicated clerical history (in three denominations). I mentioned that the two of them had now shared two new things: preaching and consecrating.

After church, I waited until 1 to take pills. I wasn't picked up until around 1:50. At least I scored a water bottle in our recycling station (which I didn't even know existed). I asked SuM to toss it in the dishwasher. I also met SuM's sister who's come to visit for a few days.

Spent the afternoon reading, then watched yesterday's game show repeats. The SNL was a repeat, so didn't bother. Tried to catch up on old posts on Slog and added comments. There wasn't too much classical music on the French station but right now I'm revelling in Symphony #1 in C by Brahms (which was used extensively in a movie (title ??? from "Aimez-vous Brahms?" by Francoise Sagan) starring Ingrid Bergman and Anthony Hopkins from the early 60s. It's amazing to see how self-deprecating a woman could be, settling for an older lover who neglected her rather than accept the love of a ::horrors:: younger man!

Okay, the symphony is nearly ended and I'm taking my pills. Ahhhhh.
No new snow and temps above freezing first thing in the morning was a good way to begin as I crept cautiously along the back deck. Success! I didn't even mind sitting and waiting for my bus to arrive. I got to church at 9:30 with plenty of time to relax.

Today's feature in the examination of Jesus' Prayer was from a Buddhist interpretation from the original Aramaic. The passage beginning with "Give us this day our daily bread" was transformed by Rev. Jeff into "Eat. Pray. Love" and, as he'd watched the Oscars, there was a bit on Meryl Streep and Julia Roberts. We're doing a Reel Theology Series again this year, but I fear I will be hopelessly bewildered as I haven't seen a movie in years. Sigh.

Anyway, despite the pain (the pills were sluggish to work), I was happy to be on duty. Our performer today was another one from "Come From Away". Yay! After the service, church-John and our mutual brined Brian were reading the dosage off the back of my Robax bottle - in FRENCH!!! It was hilarious. And c-J finay found out that I can't just take a couple more as often as I'd like. Silly wabbit.

I also got a chance to talk to a new friend. From our last conversation, I was under the impression that she lived in rent-geared-to-income building not too far from me. Ha, not so fast, blondie! She old me what she's paying and I almost fainted. Luckily, she's a nurse and has a good take-home salary. So, back to more networking for me.

When I got in, SuM gave me the prezzie from her Costa Rica trip. She only got home at 5 a.m. Saturday. Ouch. I haven't opened it yet but it's an orange liqueur. Yummy. I watched last night's SNL even though it was a pre-Christmas repeat. Then I just went into twilight mode in bed while listening to the murmur of French storytelling. Later, I delighted in Mahler night with, I believe, his Symphony in D.

Okay, I'm worn out. Time for pills and a little reading.
Even more important - see me fix Brita pitcher first thing in the morning! What a relief. I'm lucky that parts merely flew off when it fell twice to the floor, but nothing leaked. So I washed everything and reassembled it.

There was a layer of snow on the ground when I left but no wind. I arrived at church at 9:30, glad to be early. It was a very special day because Brent was the guest preacher, covering the next two lines of the Lord's Prayer. He and John sat in front of me. It was a wonderful service and many people had come because Brent was there. Amazingly enough, our organist needed to keep upping the volume during our singing of the Lord's Prayer because there were so many people present. After the service, Brent was his usual naughty, teasing self with me. Aww, I miss that. What I also missed was the ::growls in frustration:: the traditional accompaniment to my second fave hymn, "It Is Well With My Soul" because our new music director decided to jazz up the piano. Arrgghh. This was written by a man who'd just lost his wife and family in a shipwreck!!!

Had a lot of time to waste after the service. Jan snagged me some truffles from the dessert table. My ride home arrived at 1:23 and we were on our way. Even though I've put off writing my "confession" on FB, I checked in after an absence of many weeks with a very brief description. Then I took it easy for the rest of the day. Watched last night's SNL and have been listening to the French station continuously. Right now, it's playing Schubert's "Unfinished Symphony". I still have mixed feelings about the piece - and him - but I vividly recall playing it … in 1969!!!

I've swallowed all of my pills and am thinking about bed. I'm also thinking of writing at least one short fic for the Romancing McShep communicy (for Valentine's month). Anyway, I'm happy about all the good things that happened today.
helenkacan: (Default)
( Feb. 8th, 2020 11:17 pm)
So I didn't go to bed until - eek - 4 a.m. Don't ask what I was thinking. Somehow I managed to sleep until 10:30. What a relief. Oh, wait, I shouldn't expect that … not when my fingers were throbbing from arthritis. Sigh.

After finishing the SGA fanfic, I'm now mired in a longish NCIS one. Kept the French station on for more of the day. Apparently, Saturday is a casual day where perfect enunciation and a deliberate pace goes out the window. In a chat during the afternoon, I kept hearing "WAY" a lot instead of "WEE" (the correct pronounciation of the word for YES).

Otherwise I watched my game show repeats abd lost things in the dark as my vision was lousy. Sigh. I'll look for my steel bottle tomorrow. But, now, a bit more reading - not too much - and bed.
Just don't ask about my vision. Well, I'll answer anyway: deplorable fuzzy white against a snowy charcoal background. Sigh. Naturally, I had editing to do for the church. And lots of emails to answer for the blind group.

But no reading and only basic TV (judge and game shows). At least I slept well - with the heat off, 'cuz I don't know how to regulate it. But I slept all the way to 9 AM, so I was pleased.
It's almost too good to believe. Slept all night and woke up around 9. had my meals delivered. S. brought over the new heater around 1:30. Apparently, it's also infrared, so it heats the body rather than the air. But I can't make out all the instructions so I don't know what I'm doing. I'll probably turn it off overnight 'cuz I can't figure out how to set the timer.

Was really busy with blind group stuff, and getting another lovely compliment (which is hilarious because I'm just doing what I love to do … as in schmoozing via email).

My good vision continues with minor fluctuations. Too bad there were no shows on TV because of the State of the DisUnion. At least I still have the French music station that's been playing odd things tonight, including a wonderful "Stand By Me". Okay, sleep now.
Especially around 3 a.m. Gulped two Robax and managed to get a few more hours of sleep. So, there was a layer of fluffy wet snow on the ground, but the temps were hovering around freezing, so I didn't even mind waiting for my ride outside before 9. With my crazy schedule, I was dropped off at church at 9:15. So I had plenty of time to sit around and be social.

We had an old friend as our guest performer today. He used to belong to The Nylons (an a cappella group) and he brought the house down with his singing, especially for the start of Black History Month. I was on duty and managed to create a lovely Communion blessing (loved having 2-3 sets of little kids come to me), but I could feel the pain nibbling away at the endges before the service ended. Two pills later - and fortified by leftover Timbits (donut holes for non-Canadians) - I managed to stay sane until my ride showed up at 1:10. I was home quickly and safely in my cocoon. Received a text from my sis RS about Family Day so I sent her a longish email.

The pain continued to torment me, so I spent time in bed,first watching last night's SNL and then listening to beautiful music. Lots of Ravel tonight. Hoping for lovely sleep and not a repetition of last night. ::crosses fingers::
Well, actually, I shouldn't. When it's fallen before, the batteries and cover have always gone flying. But, tonight, during ST: Picard, it fell twice, both times top-side down. The channel changed and I found a delightful, retro French-Canadian music channel that plays easy jazz, "Moon River" with French lyrics, "Land of Hope and Glory", and hosts who speak French. I kept the volume low enough that the monologue is almost indistinct, so I'm not trying to catch ALL of the words, but they will slip into my consciousness every so often.

Anyway, I'm really happy I found a new source of background music that keeps me feeling relaxed - even when my body is sabotaging me.
I was sitting outside at 8:10 for an 8:20 pickup. At least it was 34F and no snow yet. My expected bus cancelled on me, but its replacement (with a funny and charming driver who told me he'd driven me before) arrived at 8:38. He got me to the church exactly at 9 a.m. For an 11 a.m. service. Sigh. At least I didn't mind relaxing and chatting with my friends at a table.

There was tons of sun streaming through the windows - perfect for the light-bulb theme (Epiphany Sunday). The choir sang a sublime "Auld Lang Syne" (not the trad. melody) and our musical guest was from "Come From Away". Church-John thought he looked yummy. He also had a lovely voice.

After church, we all drove to the site of one of my fave restos, under new management. We celebrated Ash's and c-J's birthdays along with 5 others - including Brent and John. I almost never see Brent these days (liberally and figuratively). Unfortunately, my lunch did not agree with me. I'd had mulled wine for my drink and a lovely lobster-shrimp bisque with two soft slices of garlic baguette. Then came Eggs Benny with smoked chicken on a croissant. There was also a side salad, home fries, and a slice of cantaloupe and orange on the plate. Well, here's another thing that getting older means I shouldn't eat: raw onion (even though it tasted so good). I didn't even touch the home fries not that I really cared.

Anyway, c-J took me to a bank machine, then drove me home. When we got in, he figured out my fireplace remote batteries were dead and located the controls on the side. Luckily, my hand is small and I can use them easily. After he left, I really began to suffer gastric distress, so crawled into bed for a mostly miserable two-hour nap. When I got up, I knew there was NO way I'd be writing a review of today's service (so there goes my major resolution). I hope I can do it tomorrow. In the meantime, I have pills I have to swallow with the utmost delicacy. Sigh.
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